Friday, June 8, 2012

Sights and Sounds

You never know what you might find wandering around...

A random wild/domesticated turkey showed up at Trent's shop the other day.  We still haven't found it's original owners, but have found it a new home with cousins Connor and Anna.  Claire kept calling it a chicken...  :)





We went downtown last weekend for Neuse River Day and ran into an alpaca named Buddy.  Claire liked him and she touched his nose!



We also ran into Connor and Anna down at the river front waiting to meet Super Why and Woofster.  They made awesome Super Why and Princess Pea masks!


Claire and Connor met Super Why and Woofster.  All Claire wanted to do was touch the dog's fur. 


Our beautiful Steel Magnolia...  The magnolia trees are in full bloom and smell and look wonderful!


She was not super excited about riding on the tractor with Daddy this day.....  I think it was because it was loud.  This is Claire's great granddaddy's tractor. 


And Mimi and Grandpa got a new puppy!


Love,
The Scott Family


PS - check out the story about Claire from Charlotte's mom here:   http://littlemissritchie.blogspot.com/2012/06/books-for-charley-2-lovin-on-north.html

Thursday, June 7, 2012

Cardiology check up, 20 months old, and Books for Charley

 Yesterday we went to Duke for Claire's cardiology check up.  We visited the NICU while we were there and got to see Nurse Jodi!  Claire was super excited to see her and we were too.  She always took such good care of Claire.  She was always so gentle and quiet around her - just what a preemie needs. 





We also visited the ladies at the front desk!  This is where we would have to go each day to ask if we could go back and see our baby - Baby Girl Scott as she was known to everyone there. 


As we were headed to CHC, we ran into Dr. Ferranti.  He was Claire's first neonatologist when she was born.  He then rotated back around to her at Christmas time and was the doctor who finally agreed to do the ultrasound of her liver that I begged for.  And then he's the one who validated that doctors should listen to parents....  :)  And yes, he really is that tall. 


We met up with Nurse Marie also and she was finally able to give Claire her Christmas present!! 


Which we ran home and played with outside and she loves it! 



And while we were at Duke we dropped off all 122 books we collected for "Books for Charley"!!!!!!!  Claire helped me put stickers in them and thought they were for her....




This is us dropping the books off with the Duke child life specialist.  She said they would go to the little "library" up in the PCICU (Peds Cardiac ICU) for patients and they would be super excited!!!!!!  Thanks to everyone who donated books or money for this.  It is awesome!!!!


Claire weighed 27.6 lbs and measured 31.9" on her 20 month birthday.  They tried to get the elusive blood pressure but it didn't work again.  She did great on the trip up and back and did great there too. 

The cardiologist said her EKG looked good (they didn't do an echo yesterday b/c they would have had to sedate her and he didn't see the need to do one).  He got a good listen to Claire's heart this time because she was asleep in my arms when he came in.  He said that her heart sounded about the same as last time so that was good.  He also said that she still had the "mild pulmonary stenosis" and the "moderate pulmonary valve regurgitation".  Basically she still has narrowing in her pulmonary artery and there is still moderate leakage in her pulmonary valve (this is the area that may have to be replaced eventually).  But he mentioned that this is the best case scenario for good long term heart health for Claire.  That pretty much with her heart condition/CHD, this is how he would want her heart to be.  So that was good news!  AND we got to move to the once a year appointment schedule instead of the every 6 months schedule!  They will do an echo next June when we visit.  He did say we could come back earlier though if we had concerns that something was going on with Claire's heart. 

So thank you for the prayers for a good visit because they worked!!!!

Love,
The Scott Family

Wednesday, June 6, 2012

One man's trash is a little girl's treasure

Memorial Day afternoon, Trent was working on cleaning the pool.  I had to work a 1/2 day, so when Claire and I got home, we (she) lathered up in 100 SPF baby sunscreen and went out to see what Daddy was doing.  Before we got up to the pool, Claire found where the water hose had a hole in it and was spraying a small fountain of water out of it.  I bet you she played in the water for a solid hour and LOVED it!  So although our water hose has a hole in it and probably needs to be trashed, Claire thought it was the best thing ever! 







Love,

The Scott Family

PS - Happy 20 month birthday Claire!!! 

Tuesday, June 5, 2012

A chance encounter

I ran by Books A Million Friday afternoon after work to pick up a few more books for "Books for Charley".  As I waited in line to check out, I noticed that the cashier had a thin, pale scar on her chest.  Don't get me wrong, I do not go around looking at people's chests all the time.  But for some reason, it caught my attention.

She remarked about one of the children's books I was buying about how she liked the books that you can touch and feel.  As she was talking I was trying to decide if it was appropriate or not for me to ask her about her scar.  So I nervously blurted out something to the effect of "I know this is a personal/strange question, but did you have heart surgery as a child?" 

She could have easily looked at me and said "that is none of your business" or give me a blank look and ignore me.  But instead, she proudly looked at me and said "Yes! I was born with Tricuspid Atresia and did not have a Tricuspid valve.  I only have half of my heart that works."  I asked if she still only had 1/2 of her heart working and she replied yes.  I told her our daughter had Tetralogy of Fallot and had open heart surgery last year.  Then, all I could muster out was "wow, you truly are an inspiration to me."

At this point the people behind me were getting anxious to check out and somewhat pushed me out of the way.  I didn't get a chance to talk to her anymore.  I really wanted to tell her about Claire, ask her about her experiences, and also tell her the reason I was buying those children's books.  That they were going to other heart babies and they were being collected in memory of another heart baby that was born with only 1/2 a heart working. 

But I didn't get that chance.  I left to pick Claire up from my parents' house and then decided I would take Claire back by the book store so she could meet this girl.  I know Claire does not  understand what meeting someone is, but it meant something to me.   I have met lots of heart babies, but not hardly any heart baby teenagers/adults.  And to be honest, even though Claire has had a great outcome from her repair and has been given excellent prognoses of a long, healthy life, you can't tell me as a heart mom that it is not in the back of your mind "what if?"  And really, it's sometimes hard to be able to see the future and think that Claire will someday be a teenager/young adult working at her job and someone may come up and notice her scar and ask her about it.  I want Claire to be just as proud and confident as this girl was today.

So Claire and I rode back over to the bookstore the whole time thinking this girl would probably think I am some psycho stalker lady.  We walked all over the store and she was no where to be found.  I finally asked a guy working there if he knew if she was still there.  He checked and she had left for her break and would be back in about 20 minutes or so.  We could have shopped and waited, but Claire didn't have any shoes on and wanted to get down really bad.  So I figured we would stop by another time.  Maybe we will run into her again. 

So if any of you know Leah, tell her that I would love for Claire to meet her.  But please also tell her I am not a crazy stalker lady.  Thanks!

I just hope she does not think I am some lunatic.

Love,
The Scott Family


PS - Claire goes to Duke Wednesday for a cardiology check up.  Please pray for a healthy heart and a good appointment!

Sunday, June 3, 2012

Ninety

What does 90 years mean to you?  Today it means a lot to me.  My Granddaddy is 90 years old today.  What a special accomplishment!  Not many people live to be 90 and still drive, still raise a garden, and still pick up every pinecone and magnolia leaf in their yard with a 5 gallon bucket and his dog along side of him. 

My Granddaddy was born in 1922.  I Googled what important things happened in 1922 and it came back with a list of things and people I had never heard of.  I guess 90 years ago was a really long time! 

So I decided to tell you about the important things that I know of that have occured in the last 90 years that pertain to my Granddaddy. 

He was born on June 3, 1922 to two loving parents, Ray and Kizzie Carpenter, on the Carpenter family homestead in Marshville located in Anson County, NC.  He was one of 7 children and he had 3 sisters and 3 brothers.  His father operated a saw mill.  For a few years, the family lived in Florence, SC where they also operated a saw mill.  They returned to the Caudle homestead (Grandma Kizzie's family) in Peachland, NC after the family lost the business during the Depression.  After Granddaddy graduated from high school in 1941, he eventually moved to Baltimore, MD with some of his brothers and several cousins and worked in the shipyard.  When World War II broke out, he was drafted and served in the Navy in the South Pacific.  After the war, he returned to Peachland where his family was farming.  He and his brother Harrell came to Craven County to start a saw mill.  Eventually his whole family relocated to the area. 

He met Granny when she was about 15 years old after she played a basketball game.  She was supposed to have a date with a boy named Billy, but Billy brought along Granddaddy.  And the rest is history.  Granddaddy picked Granny up from her job at Penney's one day and gave her an engagement ring as they drove down the road.  They were married on August 6th, 1949 at Granny's home in Clarks (which used to be the old Clarks post office).  They planted their roots in New Bern, NC. 

Granny and Granddaddy had 4 children over the years.  These 4 children have given them 9 grandchildren, and these 9 grandchildren have given them 6 great grandchildren. 

Granddaddy built a successful logging business that supported his family.  He was then able to pass this solid business onto my Dad who has been able to support his family of a wife and 4 children, and hopes to pass it down to my brother one of these days.  Granddaddy built a strong company with a solid foundation for it to support so many people successfully.  I am not sure how long ago it was (Granddaddy said they had to pull each log out by a mule so it was a long time ago), but my Granddaddy and Trent's Granddaddy knew each other from the business.  Trent's Great Granddaddy Henry and his Granddaddy Carl had my Granddaddy come in and log their farm land where we live now.  Isn't that neat?  All those years ago, God probably knew our families would be connected some day.

Granddaddy loves to fish.  They had a nice house down in Pamlico County on the river for years where family could gather, relax, fish, and cookout.  Unfortunately, Hurricane Irene destroyed the house last August so there is just an empty lot there now.  But the memories live forever.  He and Granny also used to travel all over the country in their RV.  I remember going over to their house and just sitting in that RV wondering where in the world it had been.  And back then, an RV was a sight you didn't see much. 

It amazes me as to the changes that my Granddaddy has seen over his 90 years.  Technology, automobiles, paved roads, or shopping centers being built.....  How simple life was back then and how complicated it can be today.

My Granddaddy is a strong man.  Never have I seen him waver.  Yes, in the last several years, he hasn't felt his best.  But he still gets around better than I imagine I would at 90!  As hard as he has worked physically in his lifetime, he is doing quite well I would say!  Of course, being in the logging woods so long, he cannot hear well.  So when you get him, my dad, and a few others in the room, everyone is having to yell at one another so they can hear you.  It's pretty funny!  I tell my brother he better wear ear protection or he will be just like them when he gets old!

You might wonder what one trait is that some of us grandchildren got from our Granddaddy.  I would like to say his strength, his pride, his determination, or his hard working attitude.  But I have to break the news to you - we got "The Carpenter Earlobe."  Yes, next time you are around one of us Carpenters, check out our earlobe.  It is huge.  And it is a Carpenter trait for sure.  My brother calls them "floppies".  It is still to be determined whether Claire has floppies or not.  ;)

I am so glad that Claire is able to know her Great Granddaddy.  What an age difference.  If only they could talk to each other.  I hope she will remember him.  I remember my Great Grandmother Kizzie (Granddaddy's mother).  I think I was 4 when she passed away so I have a few memories of going to her house and visiting.  It was just behind my Granny and Granddaddy's house a few steps away. 

As strong as my Granddaddy is, I have to admit I have heard him cry once and seen him cry once in my 32 years.  And they both happened in the last year and a half.  When I was in the hospital before I had Claire, I was told I needed to call my Dad and my Granddaddy to tell them I was ok.  Well of course I was ok!  At this point I didn't realize just how bad it was for me and for Claire.  I guess everyone else knew but me.  I called my Dad first and as I said "hey Dad" he burst into tears.  I thought, wow, he must really miss me!  Just kidding.  Then I called my grandparents and talked to Granny first.  She then said Granddaddy wanted to talk to me.  I said "hey Granddaddy!" and he burst in to tears too. 

Then one weekend when I was home, before Claire came home from Duke, they came over to my parents house to eat for some occasion (Thanksgiving, Christmas??).  As they were leaving, he rolled the window down and asked if Claire was doing ok.  He then told me that he prayed for her every day and began to cry. 


I knew then that this strong, tall oak of a man also had the large, soft heart of a pine. 

Granddaddy is like an old southern pine - tall and strong, large center of heartwood.  Deep, strong roots that hold him steady.  Underneath his hard, thick layer of bark lies soft and gentle man.  The wood of a pine is soft but useful in a variety of ways.  Yes, he may have lots of knots along his bark, but these imperfections are what make him unique.  These knots show signs of the hard times and lessons learned in life.  They may be limbs removed or chapters closed during some point of his life.  They may be scars from working hard or bumps and bruises along the way of his 90 year journey so far.  The long branches that reach out from the trunk represent his family and their journeys.  Going their own way out into the world, but always staying connected to him. 

And if you look inside of this tree, you will see a piece of natures artwork.  Ninety growth rings, dark and light, thick and thin, symmetrical and asymmetrical.  Each ring representing a year of life.  And by studying these 90 rings individually, you can look back and tell what that specific year was like in his life.  If a tree has a light, thin ring just two rings in from its bark, you can tell that two years ago in the spring there wasn't enough water for the tree.  If you see that five rings in, there is a dark, thick ring, you can safely say that five years ago in the late summer or early fall, the tree had plenty of rainfall and ideal conditions for growing.  So are the growth rings of Granddaddy's 90 years.  Some years were good and some years were not as good.  And each ring of his life tells a story and makes him the man he is today. 



We are proud that he is our Granddaddy and Claire's Great Granddaddy.  And that he has reached the awesome milestone of 90 years old!  Happy Birthday Granddaddy/Great Granddaddy!


Love,
The Scott Family


PS - we have lots of pictures from his birthday party celebration that I will post later this week!

Saturday, June 2, 2012

Congratulations Dr. Rachel!

Dr. Rachel received news this week that she was accepted to do her fellowship at Duke!  Congratulations!!  What exactly does this mean?  Well, my understanding of it is that she has one more year of her residency at Duke.  If she was just planning to be a general pediatrician, she would be done after that.  But she is working towards becoming a pediatric cardiologist.  So she will have several more years (I think 3 maybe??) doing research and working in pediatric cardiology along side of other peds cards. 

Claire saw several peds cards fellows while she was in the NICU and they sometimes shadow the doctors who have completed their fellowship and sometimes they came alone. 

But what this REALLY means to us is that hopefully Dr. Rachel will get to be Claire's pediatric cardiologist until she is 18 years old.  Well, that is if Dr. Rachel stays in this area or at Duke.  Even if she left Duke and was at a hospital in NC nearby, we would travel to see her.  But we think she should just stay forever and be Claire's personal doctor.  ;)

Dr. Rachel is a special person.  We know that God brought her into that NICU room that day as an intern to watch over Claire.  I don't remember exactly when she came, but it was about a month after Claire was born I think.  I remember the room we were in, the nurses Claire had that day, and where my mom and I were sitting in the room when she walked in.  The nurses were talking and carrying on with each other and Dr. Rachel just quietly stood there.  When she finally caught a break in their conversation, she introduced herself to the nurses as Claire's new intern.  She asked if she could examine Claire and she so sweetly came over and unwrapped the blankets from around Claire and talked to Claire in such a kind, gentle voice.  When she told us she was going to school to take care of heart babies like Claire, I knew she was a gift to us from God. 

She is the one who fought, against all odds, to organize the multidisciplinary meeting between the neonatologists, pediatric cardiologists, pediatric cardiac surgeons, and the liver surgeon.  The attendings kept saying it was a big task for an intern and that it probably would not be done.  But she did it and I heard several attendings commend her on her hard work at organizing this meeting of the minds that so badly needed to be done for the best care for Claire. 

It just all worked out at the time it needed to.  And now we have a special bond with her and hope that she can continue to watch after Claire for a long, long time.  And we know we will get the BEST care possible for Claire with her.  Not that we don't like our other cardiologists, we just LOVE Dr. Rachel.  :)


This is the first picture I took of Claire and Dr. Rachel.  It was the weekend before I was going home for my baby shower and it was also right after the neonatologist had agreed with me FINALLY to do another ultrasound of Claire's liver (which in turn revealed to them that the cyst was pressing against her IVF and restricting blood flow - not good). 
December 10, 2010

This next picture is the day Claire left Duke to come home.  Dr. Rachel had told the new resident doctor who took over Claire's care after her that he had to tell her when Claire was being discharged.  She was working somewhere else on another rotation and ran over quickly to see Claire before we left! 


January 13, 2011

This was at one of our many trips back to Duke for check ups.  Dr. Rachel came down and waited to see Claire until her ultrasound was done. 


March 30, 2011
She brought Claire a special toy - the pink puppy.  It's one of Claire's favorites.  She calls it "Woof Woof" of course.  She squeezes him and snuggles with him a lot!


March 30, 2011

Dr. Rachel and Marie came up the day of Claire's liver surgery to check on her and they got their "Team Claire Rose" March of Dimes T-shirts.  Dr. Rachel checked on Claire several times during her visit. 


May 5, 2011

Another trip to Duke for a check up.  Dr. Rachel was working the pediatric floor so we met out by the fish tanks for a quick visit!


August 12, 2011

Yet another CHC visit at Duke and hugs with Dr. Rachel.


October 13, 2011

Our most recent visit a few weeks ago at CHC.  Dr. Rachel came all the way from Duke South to CHC to see Claire! 
May 14, 2012


We are super excited and very proud of our Dr. Rachel!!!

Love,
The Scott Family

Friday, June 1, 2012

Some things never change

You may remember this post from last August (http://babyclairesblog.blogspot.com/2011/08/this-is-storm-that-never-ends.html) about Hurricane Irene and the damage is caused.  Below is a picture of the front of Trent's Granddaddy's house after the hurricane.  Trent and Grandma Neat Neat (and several others) have worked really, really hard to get this house back in shape.  I actually think it's in better shape than it has been in since it was built! 

We rent this house out and as we were finishing it up, we were trying to figure out who was going to rent it.  It couldn't be just anybody.  It's right on our farm, a few feet from Trent's greenhouse, shop, and all of his equipment.  Plus it was his grandparent's house.  Fortunately, Aunt Amanda and Uncle Colby were looking for a place to rent in the area and this was the perfect place!  Yay for all of us!!!!  They get a nice house and some land and we get them only 1 mile from our house! 





Claire and I stopped in to visit this past weekend and I had to get her picture on this very same porch.  She is sitting between the front door and the first window on the right.  Looks great doesn't it!? 


But as I said in the title of the post, some things never change.  Anyone who has lived in Rhems long enough can remember Trent's Granddaddy pretty much lived on this front porch in his last few years as his legs were just unable to get him far.  He was somewhat homebound so he thoroughly enjoyed sitting out here and watching the cars go by.  He lived on a major highway (this same place) his whole life and had seen the road go from dirt and gravel with horse and carts to blacktop asphalt and cars gallore. 

Trent's Dad had even bought him one of those manual counter things that you press the button and it turns a number so he could "count" the cars daily.  Some days, he would count all of the cars.  Some days he would only count red cars.  Other days, he would only count trucks.  It gave his mind something to do and he would report his findings to us. 

So as Claire sat on her Great Granddaddy's porch this weekend, she was "counting" cars too.  He would be so proud of her!  And of the way his house looks and the good people living there. 





Love,
The Scott Family