Monday, August 29, 2011

This is the storm that never ends

Remember that Lambchop song "This is the song that never ends.  It goes on and on my friend.  Some people started singing it not knowing what it was, and they'll continue singing it forever just because.  This is the song that never ends....." and so on and so on.  Well, that's kind of how I feel about Hurricane Irene.  It seems/seemed like the storm that never ends. 

Thank God Irene downgraded from a Category 3 to a Category 1 before she made landfall in NC.  If it would have been any worse, I am not sure what we would have done.  I was so incredibly scared.  The high winds with rain started sometime around 9 pm and continued to get worse all night.  I had been expecting it not to be bad until daylight (a hurricane in the daylight when you can see is much easier to deal with than one at night), but I was sadly mistaken.  Thankfully Claire slept through the entire night.  I don't know how other than the grace of God.  I kept watching her video monitor thinking a tree would crash down on her room anytime. 

Our power didn't completely go out until around 6 am on Saturday.  Without any power, we couldn't get updates on the storm and that made it worse.  We knew it was bad, but we didn't know exactly what was going on.  And there had been tornadoes popping up in places, so we didn't know if we were under any tornado watches or warnings. 

Originally we thought the storm would be over around 1 pm Saturday.  Then we heard 3 to 5 pm.  It was actually almost like 8 pm before the winds subsided.  I know we were getting gusts over 100 mph.  It was crazy.  Claire acted like she had no idea it was something scary, but when the wind would hit the house, she would look around for it.  Very smart girl! 

It was such a long day.  At 9:30 am, I thought it should be at least 3 pm.  Seriously.  We pulled out all of the toys in the house I could find (whether age appropriate or not) to try to occupy Claire.  I even found a Tickle Me Elmo that Trent had given me years ago.  We have discovered Claire LOVES Elmo!  She has an Elmo book and goes for that one each time.  She opens the pages and makes a noise like she wants you to read that page.  It's great! 

Back to the storm - Trent went out before lunch to observe damage and reported by then there was a lot.  Our roadside stand was totally blown away.  The front porch had been ripped off of his granddaddy's house.  The shelter at his mom's was destroyed.  Luckily, we had minimal damage at our homes though.  And we are all safe.  I think I nearly had several anxiety attacks during the night but I came out ok!

We finally got our generator running yesterday so it was nice to have fans running in our extremely hot oven house.  As of now, we still don't have power.  We are praying soon, but the reports are that it could be Thursday until we get it back. 

We have heard from family on the Outer Banks that they are ok and we are very thankful for that.  And all of our family and friends around here are ok.  Houses can be replaced; people can't. 

My dad went down to my grandparents' river house in Pamlico County today and it's totalled.  It WAS on stilts but looks like they were washed out from under the house and it just fell to the ground and fell apart.  I just cried. 

We took lots of pictures and a few videos of our damage and of us entertaining Claire during the long hours of the storm and the aftermath.

Fuzz was hanging tight with Claire. 

Someone was excited that Elmo came to visit!

Checking out the wind outside.

I resorted to the washcloth on the head game after several hours. 

Spunky and Claire

We then resorted to strolling around the house.  And then stopped to watch a little Elmo on the portable car DVD player on the coffee table. 

Our screened porch after the storm.

Big limbs down in our yard

Trent's corn demolished

The corn was "shredded" looking. 

Trent's granddaddy's house

Front of the house

Inside of Granddaddy's house

Where our roadside stand USED to be

Where the roadside stand is now

Shelter at Antia's house

We had to break out after a day stuck at home and visited Granny and Big Daddy's house.

Claire supervised the yard cleanup at Granny and Big Daddy's from her stroller.  She LOVED watching Big Daddy on the lawn mower!

More damage on Trent's farm shop

Inside of the shop

water damage at Grandma Neat Neat's

YAY!  The generator works and we have FANS!!!!

My grandparent's river house.  It used to be on stilts but I guess the water washed them out from under it. 

river house

So you can see it was pretty bad around here this weekend.  I am glad it's over.  But there are more storms out there with one on the same track as Irene.  Thanks for the prayers for us!  Continue the prayers for those who lost their homes or had lots of damage. 

On a good note - Claire has 4 teeth now!  And she's almost crawling!  She's acting like she wants more than baby food, but can't get used to the textures yet. 

The Scott Family

Friday, August 26, 2011

Go away Irene!

 Most of you know we are waiting for Hurricane Irene to get here tomorrow.  This will be Claire's first hurricane - one of her firsts that I was hoping would be a long time from now.  Not only did she (and I) expereince our very first earthquake this week, but now Irene is coming and she will be a Category 3 Hurricane when she gets here. 

Based on the pictures below, our house is directly North of the center of the hurricane as of this morning.  For our out of state friends, we live on the coast of NC. 

Please keep us and all of the others who will be affected by Hurricane Irene in your prayers this weekend.  We will be hunkered down at home! 

The Scott Family

Thursday, August 25, 2011

A year ago today........... and a little of this and a little of that (REALLY long post)

Wow - I just realized that a year ago today, our world changed forever.  On August 25, 2010, I went to ECU for a fetal echo to check Claire's heart.  I wasn't worried at all.  Both of my best friends had to have them done due to over reactive doctors.  Theirs only lasted 15 minutes or so and they were out the door.  No big deal, right?  My mom, my mother in law, and my sister Amanda went with me as it was an opportunity for them to see the baby hopefully. 

The nurse would only let one person back with me, so my mom went back.  The tech came in and started the fetal echo.  The maternal fetal medicine doctor at my previous appointment had thought she had seen a small hole in Claire's heart, but really didn't think it was.  She admitted she and the nurses discussed not even saying anything to me about it.  But to be on the safe side  (and as a overly cautious doctor and mother), she wanted to get an echo just to rule anything out.  After pushing on my belly harder and harder trying to get good pictures, making me turn different ways, and even tilting the table I was laying on backwards where my head was pointed towards the floor, the tech got another tech to come in because she couldn't get a good view.  Then the pediatric cardiologist came in.  After about almost an hour of me laying there and them not saying anything to me, I started crying.  My mom did too.  We knew something had to be wrong.  The doctor noticed and explained that he would explain everything to us once they were done and in the conference room. 

We met Amanda and Anita in the conference room and just waited.  The cardiologist came in with his diagram of a normal heart and then a diagram of Claire's heart.  He said "your baby has a heart defect known as Tetralogy of Fallot" or something to that affect and I busted into tears again.  I apologized for crying, and he was emphatic that I not apologize and handed me the box of tissues.  Although I tried to understand, it was hard.  I am one of those people that when I hear bad news, I all of a sudden tune everything else out and I don't hear a thing. 

The diagram the cardiologist gave us.  Normal heart on the left, Claire's heart on the right.

Next thing I remember is getting out to the car, seeing lots of texts from my best friends wondering what was taking so long, and trying to figure out how I was going to tell Trent when I got home.  It was a really hard day.  That was also the day Trent said we were going to Duke no matter what.  I ended up having to go to work after that (I was trying to save up all the vacation time I had), and was a bawling mess the rest of the day.  It was the first time I ever even considered our baby having a heart defect.  I had considered Downs Syndrome since I 31 years old.  But never did I ever think of a heart defect.  Never did I know what those few words would mean for our child's journey through life. 

But now, a year later, I am so thankful for our heart baby.  She has the best heart of anyone I know and has made our hearts grow bigger and fuller.  But wow, it makes you realize just how fast life can change - in just a second. 

Onto present day stuff:

I am trying to get Claire to start eating some solid foods.  She is doing the "guilt stare" again like she did before we started her on baby food.  She watches us eat everything and now acts like she's chewing when we chew.  So I tried giving her some whole peas this week.  She hated them.  I then tried mashing them up in her pureed sweet potatoes, and she gagged.  So that was not a success.  I believe she is like her momma and doesn't like peas - I can't blame her!!  It's like she was the Princess and the Pea and instead of feeling the pea under the mattress, she could taste the pea in her sweet potatoes. 

The princess and the pea (literally).

When we visited with Ava last weekend, she shared some veggie dip puff things with Claire and she ate one.  So my mom bought some for Claire this week and she has eaten a few of them.  Slowly but surely she is getting the hang of it.  Here is a video of her eating and chewing like a big girl on the ride to Duke yesterday.  Too cute!

Speaking of Duke, Claire had her cardiology check up yesterday.  We had a good trip up there and had a good visit at Duke.  Claire weighed about 18 1/2 lbs (yay!!), her BP was good, and she basically slept during her entire cardiology exam.  So I know Dr. Barker got a real good listen to Claire's heart yesterday.  He was pleased and here is what he said:

- Claire still has mild stenosis in her pulmonary artery.  With TOF, the base of the pulmonary artery where it connects with her heart was small and closed with muscle tissue.  The surgeon removed as much excess muscle tissue as possible, but of course there is still some narrowing as well as some scar tissue causing a little narrowing.  This should not get worse and should stay the same.

- Claire has "significant leakage" in her pulmonary valve.  It hasn't changed since our last visit so that is good.  Basically, the surgeon did a valve sparing surgery on Claire's pulmonary valve.  With TOF, the entire pulmonary artery, including the valve, is small.  A lot of times, surgeons have to go in and open up that valve so the blood can flow through easily to the lungs.  With Claire, her valve was open enough that the surgeon did not have to cut it open.  But he did have to trim down the leaflets in the valve that hold the blood "up" in the artery so it doesn't "leak" back down in to her heart.  Well, since the leaflets were trimmed they don't fit snug in her valve, so some of her blood leaks back down in her heart.  I don't really know a good way to explain this.  I guess it's like if you have a water hose with water in it and you squeeze the hose, the water goes towards the outlet.  So like when Claire's heart squeezes her blood out to her PA, it goes out towards her lungs.  Well, if you squeeze your hand really tight on the hose, the water will not go back down towards the water source.  If you loosen your hand, some of the water might drip back towards the spigot.  Same thing with Claire's heart.  This is the thing they have to watch closely as Claire gets older.  The valve is usually the one thing they have to replace as the child gets older with another open heart sugery.  But right now, she is good to go!

- Dr. Barker did not think that Claire had any thickening or stretching of the right side of her heart which is great news!  With TOF, since the PA is usually so small, the right side of the heart has to work overtime to squeeze the blood to the lungs.  This can cause the right side of the heart to thicken because it's working too hard.  So glad Claire's right side looks/sounds good.

- Claire has something called "wandering atrial pacemaker."  Here is a definition I found online:

A wandering pacemaker is a type of arrhythmia characterized by a shifting in the location of the heart's natural pacemaker. The result is an irregular heartbeat, with a P wave, the wave which indicates a shift of electrical activity from the right atrium to the left atrium, which moves around when the heartbeat is viewed on an electrocardiograph (ECG). This arrhythmia is usually not a cause for concern and it does not require further treatment. However, there may be cases in which it is associated with another health problem which does require attention.
The heart's natural pacemaker is located in the sinoatrial (SA) node, an area in the upper portion of the right atrium. This area includes a cluster of pacemaking cells which determine heart rhythm. In someone with a wandering pacemaker, sometimes cells in the atrioventricular (AV) node, in the lower area of the right atrium, take over pacemaking duties temporarily. This results in irregularities in the heartbeat which the patient can usually feel, and which will also show up as irregularities on an ECG.

Basically, I think this has to do with her surgery when she had that JET and the p waves were doing something funny due to her electrical circuit in her heart being cut.  Dr. Barker said there was no need to worry about it.  He just wanted to let us know.  Pretty much, most peoples' heart beats start in one location in the heart and there is some kind of sequence.  Claire's heart beat just starts in a different part of her heart.

Dr. Barker asked about Claire's first birthday plans.  When I told him we were having a big party, he said that if anyone deserved it, she did.  Glad he sees my point.  ;)

After we left Duke, we met Nurse Marie at the Mad Hatter Bake Shop in Durham.  I wish we had known about this place while we were up there so many months as the food was GREAT!  Claire was exhausted by this point, but she did allow us to eat.  I am getting pretty good at this multi-tasking while eating.  I actually ate most of my food, fed Claire, kept Claire occupied with toys, and carried on a decent conversation.  By the end, Claire was ready for a nap, so we headed on home.  It was a nice treat and good to see our sweet friend Marie.

On another note, while waiting for Dr. Barker yesterday, I noticed Claire's bottom 2 teeth had dark gray streaks down the back of them and some gray on the front of the teeth.  Of course, I freaked out and posted it to Facebook to see if anyone else had ever dealt with this anomoly!!!  I mean, really??!?!  Are my child's teeth rotting already!?!?!?  Needless to say, we finally figured out that her liquid vitamin that she takes each day with iron can cause this discoloration.  Shew!!!!  The things you learn as a parent!

And then mom-guilt sent in EARLY this morning.  Claire has been sleeping thorugh the night (while the dog has not), so I was sure as tired as she was yesterday that we'd have no waking up episodes last night.  Well, at 3:30 am, Claire decided she was hungry.  I got up to feed her and noticed her diaper was really wet, so I knew what that meant.  A fight was about to happen at 3:30 am.  For some reason, Claire throws a heeny hiney when I change her diaper in the middle of the night.  She doesn't do it any other time.  But if she wakes in the middle of the night and I go to change her diaper, she kicks, screams, arches her back, straightens her legs out tight, and wakes the whole house up.  So with her sleeping through the night, we haven't had that issue lately. 

But last night we did!  So that woke her up pretty good and then I knew we would be up a while.  She ate a bottle and fell asleep abuot 3 times and every time I would lay her down in the crib, she would wake back up immediately.  I even fixed another bottle thinking she was hungry and she ate part of it.   Finally she went back to sleep for the 4th time and I laid her down.  It was about 5 am and it was then that I thought maybe I smelled a dirty diaper.  Seriously!  Is that why she couldn't sleep?!?!  I am such a bad mom that I was so tired I couldn't even figure that out?!?!  As I went back to lay in our bed, I watched Claire sleeping peacefully on the video monitor thinking how terrible I was for being aggravated that she wouldn't go back to sleep, when all the while, she had a dirty diaper and was trying to tell me!!

So I went back upstairs, guilt-ridden, to change her diaper and rock her back to sleep again.  It was then when I took her diaper off that I realized it WASN'Tdirty!!!!  I woke her back up for nothing!  I guess she passed some gas as I laid her down that last time and I mistook it for a dirty diaper.  Poor baby! 

Anyways, we are preparing for Claire's first hurricane, Irene.  I think it's a category 3, so I am very scared.  Pray that this thing just goes away!!!

The Scott Family

Monday, August 22, 2011


Claire was able to meet one of her BFFBB this weekend.  What is a BFFBB?  Best Friend Forever Before Birth - or otherwise known as "besties"  ;) !!!  Claire and Ava, along with Isabella, were BFFs before they were even born.  Isabella was due in April 2010, Ava was due October 2010 and Claire was due December 2010.  We knew Becky and Beth were pregnant at the same time, but didn't know that I was actually a few weeks pregnant when Isabella was born. 

Ava was supposed to be born way before Claire, but Claire decided she wanted to come first.  Becky and I had been at the birth of Beth's 2 children, and we had all planned that we would be there when Ava was born and they would be there when Claire was born.  It's just something we do.  But unfortunately Beth and Becky weren't able to be at Claire's birth because she came in the middle of the night.  And I wasn't able to be at Ava's birth since we were still at Duke when Ava was born. 

But anyways, we all thought these 3 girls would be playing together a lot this first year but with all of Claire's surgeries and everything, she's only met Isabella for a short time at church and then met Ava for the first time yesterday.  We went to a park in Kinston and had a great time!  Ava is getting so big!!  Although Claire and Ava are actually about the same size, I have a hard time "seeing" it.  I told Becky I think I still have this perception of Claire as so much smaller than she really is.  Is this a normal preemie mom thing??  Or just me?

Anyways the girls played and Becky and I got to catch up.  It was really nice.  It makes me see that I have to get Claire out to visit friends more.  She really needs that interaction.  So I am on a mission to schedule her some play dates!  My mom might not be so excited, or maybe she will be so they can get out!  I am hoping to get some scheduled during the week too so it's not just on the weekends. 

Here are a few pictures from yesterday.  It was a task trying to get them to both look at the same time! 

I hope Becky got some good pictures with her nice camera!!! 

On another note, Claire's top 2 teeth are coming in!  The right one is already through the gum.  We have a cardiology check up this week at Duke.  I am praying it goes well.  If so, we won't have to go back for 6 months! 

The Scott Family

Wednesday, August 17, 2011

Party planning

I can hardly believe it's time to start planning Claire's 1st birthday party!!!  Seriously, where has this year gone?  Well, I know where part of it went - time gets lost when you live in a hospital for several months.  But other than that, I just don't understand how the time went by so quickly. 

This year has been such an incredible journey for Claire and our family.  We have had sooooo much support, prayers, and love along the way that have helped us tremendously. 

Trent and I have always been the ones to say that whenever we had kids, we would not have these big huge birthday parties.  Especially for the first few since the kids don't really know what is going on anyway.  Well, I guess we will be eating our words this year.  We are not planning a huge blow out party or anything, but just planning to invite tons of people! 

The "plan" (we all know how I feel about this four letter word these days) is to celebrate Claire's birthday on Saturday, October 8th.  We will just have finger foods and then cake and ice cream.  To save money, I am planning to send out Evite invitations (thanks for the idea Eliza!!) instead of mailing invitations.  But we need your help.  I know there are a lot of you out there who read the blog, have helped us this year, pray for Claire, or support and love us in so many different ways, but I don't have your email addresses.  If you want to come to Claire's birthday party celebration, we want you to be there!  So please go ahead and send me your email address to ASAP so I can get you on the list!!!!  Or if you think I might not have it, send it to me anyway!  I know I converse with a lot of you on Facebook, but that doesn't mean I have your email address!  I will probably be emailing out the invitations in the next few weeks with all of the details.   

We are asking that you do not bring any gifts for Claire.   We will be asking that you fill out a "blessing card" (probably like an index card) for Claire at the party (or if you can't make it, you can mail one to us!).  I want to make a book of blessings for Claire with blessings and comments from all of her friends.  So be prepared to write a little something to her - it can be a prayer, a blessing for her, a memory of Claire, or how she has blessed your life this year.  I think this will mean so much more to Claire than any gift possible. 

Please also do not forget that Erin McCoy Photography will be coming ALL the way from Florida to take pictures at Claire's first birthday bash!  Go ahead and book your DISCOUNTED session with her while she is in town!!!!  And I thought we were getting Claire's birthday cake made by Icing Smiles, but our favorite Duke labor and delivery nurse, Tammy, offered to make Claire's cake!!!!!  How special will that be?!?!  So Icing Smiles put Claire on their October 2012 calendar.  :)

We will be celebrating this miracle below.  Here are a few pictures from day 1 and day 2 of life.  We were not able to see Claire until almost 12 hours after she was born and were not able to hold her until the 2nd day.  That bili light eye mask looks huge in these pictures, but in reality, it's tiny. 
Claire's first pictures

Claire's BIRTHday

Notice that Claire's entire hand is only as big as Trent's first knuckle on his finger.  That's tiny!!!!

And her leg is so tiny compared to my hand. 

First time holding Claire

Come help us celebrate our miracle's first birthday!!

The Scott Family

Tuesday, August 16, 2011

The mystery has been solved!

I was wrong!  Claire does NOT have her gallbladder.  The surgeon called yesterday and as sure as I was that she was going to tell me it was a mistake on radiology's part, she did not.  She explained that she did remove Claire's gallbladder as it sits right there with the right lobe of her liver.  And the right lobe of the liver basically is the main source of blood supply to the gallbladder.  So without an entire right lobe, the gallbladder would not get any blood.  So it had to come out. 

So not only did Claire have the 3 surgeries that I knew she had (liver resection, inversion appendectomy, and 2 inguinal hernias repaired), she also had her gallbladder removed.  No wonder the child had a harder time recovering from that surgery than her open heart surgery!  It took me a solid week to recover when I had my gallbladder removed laproscopically at age 25.  Bless her heart!!!!

It's weird though that each day at rounds, it was never mentioned that her gallbladder had been removed.  Even if we had not caught it on the day of surgery, I would think we would have caught it that week afterwards.  Who knows.  Maybe the removal of the gallbladder is encompassed with the terms right hepatectomy.

So anyways, we don't have to worry about Claire having an appendicitis or gallbladder attacks when she's older.  Ruling out 2 more possible surgeries!!!  YAY!

To catch up on other things - Emma came home late last week and will have to go back this week for another swallow study.  Please keep her in  your prayers.  I haven't heard how Claire Elizabeth is doing lately. 

Also, we have collected about 45 books for the Books for Charley event!!!!!  That is great!  Thank you to all who have participated!  If you still want to donate, please do so by the end of August. 

Claire is continuing to roll everywhere.  She is starting to look like she will be scooting backwards sooner than later.  Trent says she is now "snuggly size" which means she is big enough to snuggle in the bed with us in the mornings!  Before now, she was just so small that she'd get lost in the mattress.  Claire "claps" sometimes or what looks like clapping.  She also loves watching the news and Wheel of Fortune.  I think with the news, she loves the music that plays and on Wheel she likes the colors of the wheel spinning.  And WOF comes on right after the news, so that's why it's on! 

As you know, we participated in the "Every Heart Has a Story" blog event yesterday.  After reading some of the other heart mom's blogs out there, I realize just how fortunate we have been with Claire.  Even though it's been tough, others out there have it much, much harder than we ever have.  It really makes me appreciate the small things over and over. 

Claire helped me cook supper last night with her spatula as seen below.  She did an excellent job!  ;)

The Scott Family

Monday, August 15, 2011

Every Heart Has A Story Event and a hodge podge of other things

Wow - this was a very busy, yet great, weekend! 

First things first - today is a special day in the heart mom blog world.  There is one heart mom that "hosts" a special blog event called "Every Heart Has A Story" on her blog.  It's where all the heart mom's can post a link to their blog and their child's heart story.  This is awesome because all of the other heart moms out there can go to this one page and find all kinds of heart blogs and websites of other childrens' stories!  I have found a lot of heart blogs at this page.  I think if you click on the picture below, it will take you to the blog.  I posted Claire's story there this morning!

To follow up from last week, I still have not heard from the surgeon as to where exactly Claire's gallbladder is.  I am hoping to hear soon.  If not, I will call back this week!

Onto this past weekend.  It was a busy one!  Saturday, Claire sat in a high chair at a restaurant for the first time.  She was still a little small and a little wobbly, but she liked it a lot better than sitting in the car seat the whole time. 

Saturday afternoon, Trent and I ended up consolidating my truck and his truck into one family vehicle for me to drive.  He still has his farm/work truck, but by doing this, we were able to cut out an entire vehicle payment a month!  That will definitely be a huge help!!!!

We decided to try Claire in the nursery again at church Sunday and she did great!  She looked so cute in her ladybug dress at church that Mrs. Susan gave her when I was only a few months pregnant.  She can finally wear it!!!!!

These next few pictures are "catch up" pictures meaning they are from a few weeks ago, but I am just now getting around to posting them.  But wanted to share!!

Claire visited VBS at Centenary UMC 2 weeks ago and stopped by in the nursery.  Here are a few pictures of her new friends!

Below is the infamous birthday party hat that Granny Mary puts on Claire every month birthday.  This is from her 10 month birthday on August 6th. 

Here is Claire enjoying her new toys!

And having fun in the swing at Grandma Neat Neats!

These next pictures are from my birthday at the end of July.  We went swimming and ate good food and birthday cake.  As you can see, Claire doesn't quite know what to think of people singing "Happy Birthday"!  I also tried to get her to stick her finger in the cake but she wouldn't.  The second picture is just before the melt down began....

On a different note, here is Claire back at Grandma Neat Neat's out for a stroll!  This was while me and Trent were trading vehicles.  She looks like she had lots of fun!

Now back to our weekend.  Well, Sunday was busy, busy, busy!  We went to church and Claire did awesome in the nursery even only after a 30 minute nap that morning.  We then decided we would attempt to eat at Flounder's with Grandpa to celebrate his 85th birthday.  Claire slept through part of it and then at the other part and did great!  Not long after that, we went to Grandpa's actual party and had cake and ice cream.  You can see Claire in the background checking out the cake!  I gave Claire a taste of the homemade peach ice cream.  She didn't quite know what to think of it.  Claire was so tired while we were at the table eating, she actually fell asleep sitting up in my arms!  Too sweet.  She also got to play with her cousins Anna and Connor at the party.  Fun, fun!

Here is a picture of 4 generations - Great Grandpa, Claire, Grandma Neat Neat, and Daddy.

After we left the party, Claire and I went to Cooper's Snowballs in New Bern.  They were hosting a fundraiser for their great-niece who is 3 years old and needs a heart transplant in South Carolina.  A serious virus attacked her healthy heart and now she is on the Berlin Heart and at the hospital awaiting a heart.  So of course we had to go support this other heart baby!  Claire ordered a mango sugar free snowball.  She wasn't a fan of the cold ice, but she ate a bite anyway and felt good about helping out another heart baby like her. 

So needless to say, we had a very busy weekend!  I actually had to wake Claire up this morning after 7 am since she was sleeping like a log and I had to go to work.  Have a great Monday!

The Scott Family