Monday, April 9, 2012

Catching up

This will be an attempt to catch everyone up on how Claire is feeling/doing and on our Easter weekend.  Claire seems to be almost 100%.  She is back to doing and acting like she normally does.  She's happy and energetic!  She's eating almost her old diet, and drinking almost what she was before she got sick. 

Claire is still on the antibiotic and went back to the pediatrician today for a follow up appointment.  They had to draw blood again to run metabolic/liver panels to see if they have come down yet or not and they also had to cath her to get a urine sample to test for the UTI and Klebsiella.  Speaking of Klebsiella, I pulled out Claire's medical records from Duke this weekend to see if when she had that UTI in November 2010 if it mentioned anything about Klebsiella.  The tummy symptoms seemed the same - horrible stool smell, diarrhea, blood in stool, etc.  And low and behold, on 11/8/10 she tested positive for Klebsiella UTI.  See, it pays to have boxes and boxes of Claire's medical records!

Anyways, I asked if since she had had this twice already if it meant she would be susceptible to having it over and over.  They didn't know but said it could be a possibility.  But it would be something to look at if this happens again.  Also, we decided today to go ahead and get Claire under a pediatric hepatologist.  I have been asking for this for a year and a half and never really got anywhere.  So I am glad to hopefully get this ball rolling.  I really feel that Claire needs to be followed by a liver specialist.  So we will see how that goes. 

We should get the lab results back sometime hopefully tomorrow for the liver panels.  It may take a few days for the urine culture to grow and to hear back from that, but maybe by the end of the week. 

Claire recognized the doctor's office today out in the parking lot.  Usually she knows where she is as soon as we get in the door.  Today, as soon as she got out of the car, she started crying.  It's pitiful.  But she is so brave.  I cannot imagine going through all that she has in her little life.  Like my mom said, no wonder she doesn't like to be held or held down.  And she probably never will like to be held or held down.  Who can blame her?

On to the fun things!  We had a fun Easter weekend.  Here are some pictures to prove it!

We started out the weekend on Saturday with a community Easter egg hunt and it was a lot of fun!

Ready to find eggs!

Claire and Izzie hunting....

Ava found the candy....

And here is where Claire stole an egg from McKenzie's basket.  And McKenzie was NOT happy!

Connor and Anna found a bunch of eggs!

And these two below....  This is the little boy who kissed Claire a few weekends ago (the blog about love at first sight).  They have the same exact hair color and curls.  And they live about 1.5 miles from each other.  And are 8 months apart in age.  And are both Duke ICN babies.  And his parents and Trent and I are already worried what they will be up to together in about 15 years.......

Here Layn is telling Claire he is sorry for accidentally knocking her down.  He is hugging her.  :)

And here is beautiful Lily...

And the "crew" of me and Claire, Beth and Izzie, Becky and Ava, Paige and Noah. 

Christian and Caden enjoying some snacks...

Grandma and Claire playing pool and hiding from the vacuum cleaner while we cleaned up all of the cookie and goldfish crumbs after the egg hunt.


Then Claire and I dyed a few eggs...

The Easter Bunny came!  He brought Claire bubbles, a heart hair bow, "Where's Baby's Easter Eggs?" book, a sippy cup, new utensils, animal crackers, M&Ms, a monkey with bunny ears, and even brought Daddy some Cadbury eggs.

M&Ms!  YES!

Someone really wants Diet Pepsi...

Love my new hairbow from the Easter Bunny!

We ate Easter lunch with my family.  Claire was not into taking pictures, but I tried.

Checking out the tree with Big Daddy.

Hanging out with Daddy.

Can you see Elmo??

And we went to another Easter egg hunt and Claire was the only hunter...

Daddy helped her find eggs...

We had a fun weekend! 

The Scott Family

1 comment: