Wednesday, December 29, 2010

Make up day

Claire was so alert and awake yesterday that today, she slept most of the day.  She was up to 6 lbs 8 oz last night and is eating out of a big girl bottle.  She is able to eat 2 bottles a day of breast milk and the rest is formula.  They are taking it slow to see how her body will react to the breast milk and if she will have any allergic reactions to it.  I hope not!  Now that she has so much more room in her belly, she's eating around 100 mLs (or about 4 oz) each feeding.  Before she could only eat about 40-50 mLs and that was pushing it. 

The cardiologists came by today to check on Claire.  They are going to start monitoring her more closely now due to the fact that they as well as the surgeons are trying to figure out a plan for Claire's surgeries.  They hope they can all get together next week sometime.  Our favorite doctor is working so hard on getting this meeting together and we are all so grateful to her.  It's not the easiest task to get several doctors from several disciplines together all at once! 

I just called to get a night time update, but they had just moved Claire to TCN so I will have to call back.  We are hoping her and Eliza are near each other!!  Moving to TCN is always scary to us, but we are hoping this time that everything will stay on track. 

Thank you for all of the continued prayers and concern.  Although we have made it through some tough times, there are some really scary and tough times ahead with the surgeries and all of the decisions that have to be made and risks that have to be weighed.  Please continue to pray for Claire and her doctors that God guides them to make the best decisions to help Claire. 


The Scott Family

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