This is my very first blog!!!! :)
Claire was so excited today to see her Daddy again! Every time I talked to her about him coming to visit, her heart rate increased. Trent was able to hold his little girl for the first time today and they both loved it! She was upset when the nurse took her out of her isolette, but as soon as Claire was placed in her daddy's arms and he started talking to her, Claire's eyes opened really wide and she calmed right down.
Claire is definitely Trent's daughter. Not only does she look just like him, she has his personality, determination, fight, and strong will. Our daughter has taught us the real meaning of strength through this whole process. She has more determination and courage than I could ever dream of having.
As far as medical updates, everything is still staying about the same except that she is not on the biliblanket and lights today! Yay! Her bilirubin is down between 3 and 4. Her labs are coming back fairly normal. Tomorrow the surgery team and the radiologists plan to get together to determine what type of imaging will produce the best results on Clarie's liver cysts. They plan to either do an MRI or another ultrasound. Hopefully they will get the answers they need to figure out what exactly these cysts are and what to do about them. The cardiologist came by today and listened to Claire's heart and it sounded good for a tetralogy patient. They are just going to continue to monitor the heart. They also did another ultrasound of Clarie's brain today to check the status of the level 1 brain bleed. The doctor said it had not changed since her first day of life. They will do another ultrasound of this on day of life 30 to see if it has changed.
Claire's nurses and doctors are awesome! They are truly taking good care of her. The prayers for Claire are tremendous and are truly getting us through day by day. We have learned that God is in control and He has a plan for all of us. This experience has made me realize that my plans are no plans and to take each day as it comes. Thank you for everything that you are doing for us. We are so humbled.